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our directory of newsletters, articles, therapies, videos, policies, communities and other LINKs about childhood disability

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AllGeneral disabilities
Attention deficit hyperactivity disorder Autism spectrum disorder Cerebral palsy Congenital Heart Disease Down syndrome Epilepsy Global developmental delay High Risk Newborn Juvenile Arthritis Mental Health Traumatic Brain Injury

Microarray scans of the whole genome give cost-effective diagnoses of global developmental delay

Learn about Global developmental delay

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Microarray analysis can give a complete and detailed picture of the genome, making other costly tests unnecessary.

What is the likelihood for ongoing seizures in children without an apparent cause for their particular epilepsy?

Learn about Epilepsy

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The main aim of this study was to determine what factors predict the seizure outcome of children with epilepsy.

When do children diagnosed with epilepsy continue to have seizures over the long-term?

Learn about Epilepsy

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The main aim of this study was to determine seizure status of children 2 to 17 years of age diagnosed with epilepsy.

Understanding adolescent- onset epilepsy and the risks involved

Learn about Epilepsy

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The authors of this study found a variety of reasons why some patients continued to experience seizures after treatment, or required prolonged use of medication to treat seizures.

How do adolescents with epilepsy view their quality of life?

Learn about Epilepsy

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The primary aim of this study was to gain a greater understanding of how children and adolescents with epilepsy (specifically, epilepsy that does not respond to medical treatment) perceive their quality of life.

Some cases of complex partial epilepsy (CPE) are unresponsive to a single drug treatment

Learn about Epilepsy

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Complex partial epilepsy (CPE) is a developmental disorder defined by recurrent seizures that are localized to one part of the brain and can impair consciousness or awareness

Epileptic seizures may promote spinal cord injuries in patients with spinal instrumentation for scoliosis

Learn about Epilepsy

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Beyond the effects of seizures, spinal instrumentation inserted surgically to treat scoliosis may add pressure to the spine, making injuries even more likely.

Readily available clinical indicators may predict risk of adverse outcome in asphyxiated newborns who experience seizures

Learn about Epilepsy,Global developmental delay

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Perinatal asphyxia in newborns can lead to a range of disorders including cerebral palsy, intellectual disability, global developmental delay, or epilepsy.

New scoring system may help doctors to predict future neurological deficits in newborns who experience seizures

Learn about Epilepsy

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A scoring system based on certain risk-factors that predispose newborns experiencing seizures to long-term developmental disability will help doctors to identify patients who will benefit from early treatment.

Topiromate may be effective for treating seizures in newborns

Learn about Epilepsy

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Topiramate, approved by the Food and Drug Administration (FDA) for use in children older than two years of age, has been shown to be effective for treating seizures, and, moreover, it seems to protect the brain from injury.

Gene duplications may play a role in developmental disorders with autism-like characteristics

Learn about Autism spectrum disorder

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Genetic duplications or deletions may exist even in patients with normal karyotypes, and these variations may play an explanatory role in a patient’s autism-like characteristics.

One case of extreme prematurity suggests a possible link between cerebellar injury and autism spectrum disorders

Learn about Autism spectrum disorder

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As more preterm survivors of cerebellar injury are monitored for long-term development, physicians will be able to more readily evaluate potential risk for ASD associated with extreme prematurity and cerebellar injury.

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LINK Highlight

Ensuring the mental health of children 5-12 years old before and after the COVID-19 pandemic

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This newsletter evaluates the impact of the Covid-19 pandemic on the mental health of children 5- 12 years of age and the unique challenges experienced by children with neurodevelopmental disorders. The aim is to provide recommendations to support children’s mental health during and after the pandemic.

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